Nothing fancy here. No pictures. Just wanted to post an updated on my health.
As many of you know, I was taken by ambulance to the hospital on September, 3. My legs hurt an 12, on a pain scale of 10! (More about that in a minute.) I really thought my cerebral palsy had finally gotten the best of me! Even though it’s not progressive, it can contribute to unbearable pain forcing me to have a heart to heart with God: “Lord, I know your word on disability forwards and backwards, but really? How can I bear such pain?”
Before I write about my hospitalization and diagnosis, Let me go back two days before and ask a question: Can a hospital stay turn out to be a blessing?
One of the last things I read on Facebook before I got sick was the following from my pastor.
I absolutely love it when my friend Tait reads the Scriptures as part of the Sunday morning service. He is has a brilliant mind and is a great writer (he writes the sermon reflections for our IAC Notes each week, and tons of other stuff as well!), but speech comes hard for him because of cerebral palsy. It was powerful to hear him read from Exodus 4 this morning in second service, where Moses is complaining that he is “slow of speech.” Tait is a living witness that we speak not because it’s easy, but because we’re compelled to make known what we have witnessed. There is a glory that goes beyond our words: but somehow we trust that our stammers are pointing the way.
I read the Old Testament scripture that Sunday. It was the first time that the preacher reached out to me to see if I would read a certain scripture passage. He emailed me early in the week to ask if I would read the Old Testament text. It was a familiar one: Exodus 4:10-12:
Moses said to the Lord, ‘Pardon your servant, Lord. I have never been eloquent, neither in the past nor since you have spoken to your servant. I am slow of speech and tongue.’ The Lord said to him, ‘Who gave human beings their mouths? Who makes them deaf or mute? Who gives them sight or makes them blind? Is it not I, the Lord? Now go; I will help you speak and will teach you what to say.”
Well, of course! It’s one of my life’s verses because it reminds me that God designed my disability. I didn’t get a choice in it! I was called to read that verse!And the reading came just in time. God knew I’d depend on it for the rest of the week.
I don’t think it’s no accident that the last thing I read before I got sick was the Exodus passage. Nor was it an accident that I say my pastor’s post. See, as I said, disability isn’t progressive, but it does add another layer to my life . For a year and half, I’ve been having these strange symptoms of extreme pain and shaking in my legs, sweating, itchiness, among other symptoms. Kelly has taken me to doctor after doctor only to end up with no answers.
Tuesday, September 3: I had finally reached my limit. I had been in bed most of the day screaming out in pain. My legs, from my hips to my heals ached in pain…and 12 on the scale! My mom tried to rock, massage, roll me from side to side but it didn’t help. This went on for hours.
“You can’t go on this way,” Mom said. “I think you need to go to the ER.’” And when Kelly got home, we called 911.
After the usual tests in the ER, I was diagnosed with aspiration pneumonia. Imagine my surprise when I went to the hospital with pains in my legs and be told that I had problems with my lungs! I didn’t understand. I had pneumonia a few years ago, and it felt nothing like this. But okay, whatever, I was sick.
For two days, I laid in bed. Kelly kept wet cloths on my head, nurses went in and out of my room with medications, IVs, blood draws for labs. I hardly noticed. I just kept saying, “I’m sick” and slept.
I was doing better by Saturday. At least I could watch the college football games! My room actually looked different from the days when I had a fever. I began to interact with the hospital staff, Kelly, Mom, and visitors. I was up and using my chair by Sunday and Monday and was released on Tuesday afternoon.
There was some talk about moving me to a rehab unit to regain some strength. I didn’t get a reason for why this didn’t happen, but I suspect it had to do with that I was just sick and didn’t loose function because of an injury or an accident. I just needed to rest and recover on my own, which I have been doing.
The hospital stay did help us figure out, understand, and gave a roadmap to begin to solve problems I’ve been having lately. First, I choke and breath in food a lot. Thus the pneumonia. Doctor thinks I might have micro aspiration. Pray that we’ll get a quick appointment to see a specialist in Denver to get the official diagnosis.
It was just a perfect storm of symptoms that, when put all together, caused my body to go crazy. My CP may indeed contributed to this and we all know that CP cause my body to be older than it is, but overall it didn’t contribute to this illness. There are a few things we’d love to get answers to, and they’ll come. Pray with us that answers keep coming and that I continue to be on the upward swing.
Thanks for the prayers.